It’s been a strange week. It was the 45th Anniversary of Woodstock. Three days of Peace and Music and Mud. So we get to reflect, what did it really mean? Bob was home for a long weekend, and we were able to attend a party thrown by our favorite neighbor/friend/alpaca farmers, DeeDee and Bill! Bob thought about his time on a psychedelic school bus while I sipped on a Madison County wine as the sun set and we met the vintner himself; DuCard Winery has won awards for its famous Viogner and its French winemaker, Julien. When I heard that they are planning a wine and chocolate pairing on Saturday, August 23rd, I was all in…https://www.ducardvineyards.com
But the highlight of the evening was meeting my friend’s daughter Brighit, and her son Djubi. Brighit is the brilliant and beautiful Founding Director of a non-profit arts organization in Chicago, “Erasing the Distance.” http://www.erasingthedistance.org Their mission is to use “…the power of performance to disarm stigma, spark dialogue, educate, and promote healing surrounding issues of mental health.” They create plays that confront say depression, for schools, churches, organizations and the general public thereby making mental health a subject to confront with compassion and understanding; they are seeking to bring this disease out of the shadows – shining a stage light on our common humanity.
Which leads me to the next question. If you are willing to grant that each family in this country has a limited amount of money they are willing to donate to a non-profit or a charity, what’s up with the ALS foundation/ice bucket challenge campaign making 3M more than they did last year? I admit I was amused. After all, it’s almost like a-pie-in-the-face funny to watch your friends and co-workers dump ice water over their heads. And the celebrities! Lady Gaga was outrageous of course and Bill Gates was all intellectual about it. I even proudly posted a step-niece doing this on Facebook. One of Bob’s cousins is married to a man who is currently in the last stages of ALS. It’s probably one of the most feared of all diseases, including cancer, because like Ebola, there’s simply no treatment.
However, mental health diseases are the single most common problem in our country according to the CDC: “Mental illnesses account for a larger proportion of disability in developed countries than any other group of illnesses, including cancer and heart disease. In 2004, an estimated 25% of adults in the United States reported having a mental illness in the previous year. The economic cost of mental illness in the United States is substantial, approximately $300 billion in 2002. Population surveys and surveys of health-care use measure the occurrence of mental illness, associated risk behaviors (e.g., alcohol and drug abuse) and chronic conditions, and use of mental health–related care and clinical services.”
ALS, on the other hand, has been harder to quantify according to the CDC because, “Worldwide, ALS affects white males aged >60 years more often than any other group. In the United States, ALS surveillance is necessary to estimate the incidence and prevalence of ALS and collect data on risk factors. ALS is not a nationally notifiable condition in the United States (i.e., it is not a reportable condition in all jurisdictions), and individual state reporting requirements differ, with Massachusetts being the only state that mandates reporting.”
But the VA did commission a study of ALS and found roughly 3.9 cases of ALS per 100,000 people in the American general population. Which would make the occurrence of Lou Gehrig’s disease in mostly older white males less than 0.004%. A quarter of our nation’s population vs 0.004% Sooo…
I’m not saying NOT to dump a bucket of ice water on your head, and give money to ALS research. I’m just asking you not to only give your charitable donations to ALS this year. Please spread the love. Because organizations like Erasing the Distance are doing important work in their community, and I know there are others out there working to bring mental health issues to the forefront, to bring malaria nets to Africa, to fund genetic research to cure cancer and to stop the spread of polio and bring reproductive health care to women around the world. Pick your passion, and do your research.http://qz.com/249649/the-cold-hard-truth-about-the-ice-bucket-challenge/
And BTW, I went to Catholic School, in other words Woodstock wasn’t an option.